Do family dynamics not become a surreal, dreamlike, SalvadorDali-like parallel universe when someone is dying?
I find myself looking. Not really at anything, and doing it alot. Like in the bathtub. Just looking at the tiles. In bed. Just looking at the walls. And for unknown amounts of time. Blank.
Space - the final frontier.
I'm starting to float.
Peggy and I are talking.
Even Salivador Dali would find that weird.
Did you ever see that episode of Seinfeld, Bizarro-world. Yeah, kinda like that.
On the way back to Prescott from Phoenix last night after leaving the hospital Tyler and I were listening to music. Tyler and I jamming to Kid Rock, Ozzy, Poison, and Suicidal Tendencies. Driving down I-17 with the windows down at night. I asked him if it was weird that I was 36 years old and that I related to the kid, not the parents, in that Suicidal Tendencies song. You know, the one where he wants a pepsi, just one pepsi? " You think I'm crazy, You're crazy, you are driving me crazy."
He just laughed.
(I'm doing it again. Staring at the buttons on the monitor.)
Then "Unforgettable" by Nat King Cole and his daughter came on the radio. I cried the rest of the way home.
I don't think it will be much longer. Maybe a few weeks, maybe less. He is almost totally unresponsive now. He will wince or figit a little when my mom says something, or kisses him. He only responds to her. They are trying to feed him through an ng tube, but this is only temporary. Just to see if he will perk up a little. He has lost 30 pounds in the last few weeks.
The doctors have told us we need to make some decisions.
In a day or so they are going to send him home to die. Basically to starve - he very plainly stated in his living will the he doesn't want any artificial forms of feeding. No peg tube. My last act of love needs to be respect for his wishes.
It's silly, but I'm having a hard time eating.
I know everyone has a dad.
But my dad is different.
He was Superman.
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4 Comments:
Thanks for the comment on my blog....I am going to look around your site a little bit ;)
I have had a lot of loss in my life, but not to date the death of a parent. I am so sorry Barb. I know the blank stares and the just sitting. Time seems to slow down and go fast all at once. Take it all in and talk to everyone and listen to music and cry and hug Royce and the kids. It will not be ok, but it will get better in time. The last 2 sentences you wrote punched me in the gut. I can feel it from here. There isn't anything that I can say that will make it go away. Just breathe. And know you are loved.
Barb, you were there for me when my dad passed, I am available for you.
Give me your mom's address, I would like to send a letter. I don't want to intrude as this is a very personal time. However I want to show my support.
Give me a call if you need anything
I love you Barb.
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